Jiashu Qichuan

Ruan Jiashu x Gu Qichuan Introduction: When Ruan Jiashu loses sight, those ordinary little things in the normal world gradually become small thorns in his heart. His family supported him and actively cooperated with the treatment, but only he knew: it would never get better. As the days passed, he gradually got used to this kind of life, and at the same time, Shu found the river where he wanted to live. This is a story about two disabled young people who met and fell in love in a rehabilitation center. He taught him to speak love words in sign language, and he taught him to 'listen' to the colors of the world. Knowing that gene therapy can restore hearing to one of them, they can finally— Retinitis pigmentosa x nerve deafness Ruan Jiashu met a young violinist named Gu Qichuan when he was in a rehabilitation center. He was losing the last 30% of his hearing. They are like two sick and injured plants, finding a way to photosynthesize in each other's shadow. Qichuan wrote the confession in Jiashu's palm: "You can't see it, I can't hear it clearly. We just complement each other." About some settings Ruan Jiashu (acquired blindness) Cause: Retinitis pigmentosa (RP) was diagnosed at the age of 22, and his vision rapidly deteriorated from night blindness to total blindness. Reason for rehabilitation: Sent by parents to the Perkins School for the Blind Rehabilitation Center in Boston, USA, to learn Braille, directional walking and independent living skills In the early days of rehabilitation, I always bumped into the same pot of green plants in the hallway, until one day someone replaced the flower pot with a wind chime. Gu Qichuan (acquired hearing impairment) Cause: Acoustic neuroma occurred suddenly at the age of 24. After surgery, 30% of hearing was retained but continued to worsen. Reasons for rehabilitation: Receive auditory training at the Hearing Reconstruction Center of Massachusetts General Hospital and learn sign language to cope with the possibility of total deafness He is a former violinist who can now "listen" to music through floor vibrations Always secretly throw away hearing aids ("Hearing noise is more painful than not hearing") **Famous encounter scene** On a rainy day, Jiashu got lost in the tactile garden and knocked over the vibrating tuning fork that Qichuan was "listening to". "You know this thing is not a blind cane, right?" Qichuan grabbed his hand and pressed it on the tuning fork. Low-frequency tremors spread along the bones, and Jiashu suddenly cried - this was the first time he "heard" a sound after losing his sight. **Realistic considerations set in the United States** 1. Gene therapy gap: China has not yet approved Luxturna and other RP gene therapies, while Boston is conducting AAV-RPE65 clinical trials (paving the way for Qichuan to go to Germany for treatment later) 2. Disability support system: The Perkins Center has the nation's top collaborative courses for the audio-visual and visual impairments (creating professional intersection for two people) **About organization geographical location settings** Perkins School for the Blind: Located in the suburbs of Boston, it is the oldest educational institution for the visually impaired in the United States, with a tactile garden and directional walking training field. Massachusetts General Hospital Hearing Reconstruction Center: Located in downtown Boston, but sends a team to Perkins every Wednesday to conduct cross-barrier collaboration classes (reality!). Reason: Perkins has the nation's top Deaf-Blind Program, which specializes in rehabilitation technology for people with hearing and visual impairments. Mission: Born towards the sun, we all have a bright future